Consumer Directed Personal Assistance Association of New York State
EARLY BIRD CONFERENCE REGISTRATION IS OPEN!
Register online before September 1, 2021 to receive $50 off the cost of registration.
CDPAANYS is offering a virtual conference option for those who cannot or do not wish to attend in person. Please make sure to specify when registering whether your attendance will be in person or virtual.
$250 CDPAANYS Members (discount code required)
$75 Non-Member Consumer
$50 CDPAANYS Member Consumer
For more conference details, including lodging and sponsor information, please visit our conference page.
Issue Brief: In NYS, Fast Food Wages Will Surpass Home Healthcare Wages on July 1, 2021
On July 1, 2021, the fast-food minimum wage will increase to $15 per hour statewide, catching up with New York City where this rate had been in place since December 31, 2018. For non-fast food industries, the current minimum wage outside New York City, and Nassau, Suffolk, and Westchester counties is $12.50/hour.
After July 1, fast food workers upstate will earn $2.50 more per hour than the vast majority of home care workers, nearly all of whom make at or slightly above the minimum wage. Low wages have made it increasingly difficult for self-directing Medicaid consumers and home care agencies to hire workers to provide home and community-based services that empower people with disabilities and seniors to live independently rather than in an institution.
As fast-food wages have risen, home care wages have stagnated, leading to ‘worst in the nation’ crisis in recruitment and retention where tens of thousands of seniors and disabled are forced to go without services or become institutionalized…
June 22 Marks the 22nd Anniversary of Olmstead v. L.C. by Zimring
FOR IMMEDIATE RELEASE
June 22, 2021
June 22 Marks the 22nd Anniversary of Olmstead v. L.C. by Zimring
Landmark Supreme Court Case determined disabled individuals have a right to services within the community over institutionalization
The Consumer Directed Personal Assistance Association of New York State (CDPAANYS), along with disability advocates across the country, is celebrating the twenty-second anniversary of the Supreme Court’s historic civil rights decision in the case of Olmstead v L.C. (by Zimring). In the intervening years, the decision has begun to fundamentally shift the landscape of how services are provided to physically, mentally, and developmentally disabled individuals. Without it, the horrors of COVID-19 in nursing homes and other institutions would have been even worse.
Lois Curtis, a Black, disabled woman involuntarily committed to institutions from childhood, will remain in the pantheon of civil rights heroes such as Rosa Parks or Harriet Tubman. Despite being told by medical professionals and State officials that she must be in an institution, she successfully challenged the State of Georgia who had enforced this arrangement. The Court found that Medicaid-funded services for individuals with disabilities must be provided within the community over institutionalization if desired by the recipient. Today, Lois Curtis lives independently and is a successful artist who received the Harriet Tubman Act of Courage Award in 2007 for her efforts in fighting injustice.
“While this anniversary is a day of celebration, it is also an important time to reflect on where we go next”, said CDPAANYS Executive Director Bryan O’Malley. “It has been more than two decades since this decision was handed down and here in New York, thousands are being forced into nursing homes despite their desire to be active members of their community.”
Consumer directed personal assistance (CDPA) is an increasingly popular option for those seeking to stay at home. Because those who need services hire and supervise their workers, the program provides the maximum amount of flexibility and participation in community activities. However, repeated cuts to Medicaid reimbursement rates over the last decade have artificially suppressed worker wages while other sectors, such as fast food and retail, pay more hourly. This has led to New York being home to the largest workforce shortage in the nation, according to Mercer workforce consulting.
Nikki Reese, a disabled woman from the Bushwick neighborhood in Brooklyn, has been using CDPA for years to allow her to live independently. However, she notes that when she recently had to fill an open spot, it took almost three months to do so, and she counts herself lucky. “My workers are very professional. They work odd shifts and overtime to do what is needed to keep me safe and at home.” When she was finally able to hire new staff, Nikki notes that she was forced to do so without taking steps that she, like most employers, typically would. “I was desperate. I had to skim over what I usually do. I couldn’t check references or take the time to see who might work best with me. I just needed help.”
Geri Mariano, a disabled woman living in Westchester, said, “Starting in September 2020, while still in the throes of the COVID-19 pandemic, I began having PAs leaving for other jobs. This forced me to put my health at further risk as I interviewed potential workers contrary to medical recommendations and the Governor’s own guidance regarding COVID-19. Several applicants who went as far as taking forms to fill out would cancel appointments to finalize, telling me they were offered other employment for higher pay. Many would instantly turn me down based on the low pay wage. Since September I have not had full coverage – even though I was approved for twenty-four hour shifts just a few months ago. As of today, I have to go as long as twelve hours alone at times. Because of surgeries gone awry over past 11 years I am mostly bed-bound and definitely stuck in bed when alone since need full assistance to get up into WC. In 1969, progressive thinking social workers helped make sure I could grow up with a family and not in an institution after being abandoned by biological parents. Today, if New York is to meet the promise of the Olmstead v. L.C. decision, we must do better and pay home care workers enough so they will want to stay in these jobs and so I can continue to live the life I want to and deserve to live in the community.”
Advocates also point to recent policy shifts apart from funding that have jeopardized New York’s compliance with the mandate established in Olmstead v L.C. Policies that encourage institutional placement for those who receive a high level of services would mandate nursing home placement despite a lack of clinical evidence indicating that hours of care can provide a basis for decision-making on one’s ability to live independently. Additionally, changes in how assessments are conducted and the legal appeal rights of seniors and disabled folks in need of services also pose a significant risk.
T.K. Small, an attorney in Brooklyn who uses CDPA today, spent 9 1/2 years in a rehabilitation hospital for kids, summed it up this way, “I had to fight to get out and build a life for myself. I won’t go back to living in an institution. I will give everything I have to make sure New York lives up to the mandate of Olmstead v L.C., because my independence, and the independence of all disabled New Yorkers, demands it.”
Friday SPRING LEARNING SERIES UPDATE
Paul Essner, CFP®, CLU, ChFC, Risk Strategies
Bryan Pendrick, CFP® , CLU, Risk Strategies
Joe Levy, Senior Vice President, Risk Strategies
Friday, May 21 at 10:00 AM
- Satisfying Affordable Care Act requirements without Minimum Essential Coverage (MEC) plans;
- How FIs can utilize Individual Coverage Health Reimbursement Accounts (IHCRA);
- Ongoing discussion of Joint Employment as relating to the RFO;
- Much more!
REGISTER TODAY FOR ADVOCACY WEEK RALLY: FEBRUARY 8
CDPAANYS and the New York State Association on Independent Living will be holding a virtual rally starting at 9:00 AM on Monday, February 8 to kick off Advocacy Week.
Join us and show your support for the campaign to #FairPay4HomeCare and lift up disability priorities in the New York State budget!
PERSONAL ASSISTANTS INCLUDED IN COVID VACCINE WEEK 5 STARTING JANUARY 11
Thank you to Governor Andrew Cuomo and the NYSDOH – New York State Health Department for recognizing the importance of making sure that personal assistants are vaccinated early!
CDPAANYS fought hard to make sure that this specific mention of PAs was made in the vaccination plan, and that any uncertainty regarding whether or not PAs were included in home care was eliminated. CDPAANYS is absolutely thrilled that the community’s voice was heard.
This is a big win for the 100,000+ workers and the consumers they work for.
REPORT: THE IMPACT OF COVID-19 ON CDPA IN NEW YORK STATE
As part of CDPAANYS’ work identifying and bringing light to disparities and gaps in services related to COVID–19, we issued a survey to collect data on the impact of the pandemic on consumers and workers.
It was widely acknowledged that many health conditions that require long-term care increase the rate of mortality from COVID-19, but the conditions for people using community based services like CDPA did not receive nearly as much attention. CDPAANYS wanted to know how the pandemic was affecting consumers and their access to services, and sent a survey to members in April asking about changes in staffing and access to personal protective equipment (PPE), among other disruptions. We used the results to create a report that we shared with lawmakers and journalists in order to bring attention to the growing long-term care crisis and advocate for legislative solutions.
You can read the final report from the survey, “The Impact of COVID–19 on Consumer Direction in New York State,” by clicking here.
Mailing List Sign Up
Mailing List Sign Up
Advocacy & News Updates
Issue Brief: In NYS, Fast Food Wages Will Surpass Home Healthcare Wages on July 1, 2021. View the brief in its entirety here. Background On July 1, 2021, the fast-food minimum wage will increase to $15 per hour statewide, catching up with New York City where this rate...
The Consumer Directed Personal Assistance Association of New York State (CDPAANYS) has released a new report, entitled The High Cost of Low Wages. The report is based on the results of a survey of consumers within Consumer Directed Personal Assistance (CDPA), updating...
Re: Temporary Suspension of Certain Regulations Related to Onboarding Personal Assistants During COVID-19 Outbreak
View the letter as a PDF file here. April 22, 2020 Donna Frescatore State Medicaid Director Office of Health Insurance Programs NYS Department of Health Corning Tower Albany, NY 12237 Re: Temporary Suspension of Certain Regulations Related to Onboarding Personal...